Speakers: Benjamin J. Miller, MD, MS, FAAOS, Associate Professor, University of Iowa, Department of Ortho and Rehab
When it comes to sarcoma treatment and data collection, where are we today?
Benjamin J. Miller, MD, MS, FAAOS: Part of what we're trying to do within the AAOS, the American Academy of Orthopaedic Surgeons and the MSTS, the Musculokeletal Tumor Society, is to collaborate by creating a registry called the Musculoskeletal Tumor Registry. And the idea behind this is that we can improve data collection. Right now throughout the United States, hopefully at some point throughout North America, and also encouraging this to be an international effort by recording all of the same data elements. So the idea behind this is historically, the way research has been done, is it's been within a single center. So for instance, myself at the University of Iowa, I would perhaps look up all the patients that I've treated and try to draw some conclusion about whether that treatment was successful or not. And we know now that this is just not the ideal way to learn lessons and be able to move forward with better treatments, starting to understand what options work and what options are not so good. And so, and also the technology is there in order to have a registry and a database in which many different sites and many different surgeons can contribute to. And there's also, you know, within these two organizations, there's a number of real dedicated surgeons and practitioners who are really making an effort and engaging to make sure that that we can all work together to answer these questions. So the the hope is the establishment of this registry will give us some answers. Not only about patient safety and quality issues, but about what treatments are the best to do, what surgical options work. Any new complications for new prostheses or new operations that are previously unreported. And hopefully in the future, this will be an effort that continues to provide information and benefit both providers and patients for years and decades to come.